Snowtrooper1966 son's heart

Dec 10, 2009
2,589
1,337
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Clarksburg, WV
#1
Dunno if Ive spoken of this on these boards before.
My youngest son, Tiberius Anthony Barron Vers 2.0 (long story) was born 6 months ago. He was diagnosed in utero with 2 congenital heart defects:

Transposition of the great arteries
&
Double outlet right ventrical

Both fairly common, and not unusual to have them together. Early prognosis was that baby would need chest open a few days after birth for a temporary solution (shunt) between aortic and pulminary arteries to assist proper oxyegination of blood. Then major open heart reconstruction scheduled around the 6 month timeframe.
Based on the preliminary diagnosis, would likely need similar surgery at each major growth stage (toddler and adolescent) to allow for body outgrowing synthetic components of surgery.
Cardiac surgeon has talked about best case scenario where once he actually is in the heart, may find that he is able to make repairs on the level that the heart is returned to a state that is considered anotomically correct, and not need further surgery.
Baby went under the knife this AM.
Just got word from the surgical team that Dr was able to perform best case surgery!
Unbelievably relived and super grateful!
Here is a pic of Tiberius in his scrubs, minutes from the start of operation:



I'm sure his attitude had a lot to do with the success of today's surgery!
 

iP5

Evangelist
Gold
Sep 7, 2010
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Toronto
#5
Outstanding. Can hardly imagine what you and yours went through.

Sent from my mobilephone using Tapatalk
 
Nov 14, 2008
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Cairo, Egypt.
#16
That is very nice to hear. Best of luck to you, your son, and the whole family, man. My niece had a very similar operation to the heart when she was about 5 or 6 months old as well and now she's 13 and everything's just fine and she actually trains and plays basketball.

Again, I wish you all the best.
 

katelynneemma

Evangelist
Gold
Jan 15, 2011
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N.Y.
#17
Best of luck to the lil guy! My best friends son had open heart surgery at 2 days old. He's now a very healthy, active and intelligent 4yo. :)
 
Dec 10, 2009
2,589
1,337
113
52
Clarksburg, WV
#19
Unfriggin beleviable...
DR said they expected to have him immobilized under heavy sedation for at least 24 hours.
In less than 18 hours, he's now awake, with his breathing tube removed and heart beating normally on its own.
So grateful!
 

Bennyboy

Genius
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Jul 21, 2010
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#20
It breaks my heart seeing such a beautiful baby go through that. I seriously hope that everything goes well and that you get to take him home soon.